Welcome to Spoonie United, the Chronic Illness Forum! A sounding board for all who have a chronic illness who wish to air their grievances or offer support to a fellow Spoonie they wish to assist.
Hi, I am Stephen Walker, the purveyor of this Blog. I have Multiple Sclerosis, my step-sister and my best friend have Fibromyalgia, and I thought it might be an idea to have a place where we could all come together and welcome the world to share life with a chronic illness.
The term “Spoonie” is new to me. I only came across it when I joined a board on Pinterest going by the Spoonie name. It transpires that anyone with a chronic illness is known as a spoonie. Why? I asked myself that very question, so I Googled it and came with the name Christine Miserandino who has lupus. She came up with the idea of counting spoons to explain her limited supply of energy living with the fatigue of lupus.
So a Spoonie is not some derogatory term for those of us living with chronic illness. It is a fond term we have adopted as special for ourselves. A badge we can wear with pride.
Spoonie United is born
I have stated, on many occasions, that I wish to use this Blog’s popularity to aid my Spoonie community. Yes, I have only recently adopted the Spoonie name, but I like it and hope you do too.
So, I have put together this post as an invitation to all fellow chronic illness experts; yes, that’s you! To share your thoughts and experiences with your particular illness to make others aware of what you live with every day. I hope that the community will come together as our collective knowledge is surely second-to-none.
This is not a Forum but, if we use it wisely, as a Chronic Illness forum, it will serve the purpose
WordPress has a perfectly serviceable comment system and if you have a point of view or a questions then leave it in the comment section and I or one of my Blog readers will respond.
If the community is willing, it will work. If nobody wishes to participate, it won’t.
So calling all fellow chronic illness people. All of you proud Spoonies – let’s make this work!
Let us know what illness you have. What you do to minimise the impact it has on your life and what prognosis your doctor or medical experts have given you.
There are countless numbers of people living with a chronic illness and many of them will feel alone and abandoned. Perhaps, by leaving your thoughts here you will provide some solace for those who feel isolated.
Many of us will be new members of this select community and, with a new diagnosis, will be confused, afraid and looking for answers. Perhaps by pooling our resources, we can provide some of those answers and provide a little peace of mind to our new members.
I have deliberately kept this post short as it is not the place for my ramblings. I wish it to be a place for you to share your views.
Most of my posts on this Blog are automatically closed for comment after a preset number of days. I have made this post an exception and it will stay open for comments as long as we need it.
If you find you wish to do this with your blog then install the plugin “Override Comment Deadline” which I found reference to on WPBeginners very useful WordPress resource.
So, do not pass up the opportunity of being one of the first to make your mark for posterity.
Share the love
Of course, now comes the unashamedly self-promoting bit. For this to be a successful community page, it has to be seen by, and participated in by, the chronic illness community. And, for that to happen, the chronic illness community must know about it. So, once again our fate lies with you. Share this page. You have a wonderful social media following. Use it.
There is a set of sharing buttons at the foot of this post to allow you to share the love easily and effectively.
Over to You
If you have Multiple Sclerosis, Fibromyalgia, Lupus, Chronic Fatigue Syndrome, Addison’s disease or Celiac, or indeed, any of the many autoimmune diseases that exist we want to hear from you.
Embrace the Spoonie name. Join the conversation. Reach out to your fellow autoimmune fighter.
Head on down to the “Leave a Reply” section below and leave your comment, thoughts, criticism OR whatever is on your mind today. We want this to be YOUR space for your thoughts. Please don’t let your community down!
Only Chronic Illness questions and comments are permitted. We reserve the right to remove any off-topic comments or unduly abusive statements.