Momo Syndrome and the Six Stone Baby
A remarkable story of a young child who by the age of two weighed six stone and was unable to walk. Momo Syndrome is a condition so rare that it is believed only three other people in the world suffer from it. One in Italy and 2 in Brazil.
When Archie Thompson was born, in June 2002, he weighed a perfectly normal 8lb 4oz but by 15 months he weighed 4 stone and by the age of two that had risen to 6 stone. This has had a profound effect on his health causing breathing difficulties and already one heart attack. It was feared that Archie, with momo syndrome, may not live for more than another year.
His father Nigel Thompson was concerned and, in desperation, called in social services for help. The first they did was investigate Sarah for overfeeding Archie. With this discounted, he was admitted to the local hospital where doctors would monitor his eating and were surprised that he ate perfectly normally for his age and continued to gain weight at an alarming rate.
In an attempt to understand the condition and the prognosis for the boy Sarah Thompson, Archie’s mother, who lives in East Sussex with her husband Nigel and two other children, Millie 4 and Robyn 11, travelled to Sao Paulo in Brazil to meet Danielli Furton a girl of 17 who is also believed to suffer from Momo Syndrome. Sarah met up with the girl, her mother and doctor to compare notes. Momo syndrome was first observed by doctors in Sao Paulo in 1993. Momo stands for macrosomia, a combination of three conditions: obesity (excess weight), macrocephaly (large head) and ocular (of the eyes). Archie Thompson had a further abnormality, he also sported a third nipple.
Despite having been extremely nervous about the meeting Sarah was relieved to discover that Danielli did indeed appear to have exactly the same condition as Archie. Danielli was overweight and had misshapen legs, but she was 17 years old and bright and cheerful despite her condition.
Momo Syndrome: The future
Sarah spent a little time with the family to see how Danielli coped and was very encouraged. She returned home, to England, satisfied that even with his baby giantism, little Archie could have a future.
Doctors and the medical profession still do not fully understand how Momo Syndrome works but, now, will be able to watch Archie develop and learn from this very rare condition that only affects 1 in 100 million ….
The name Momo is an acronym of the four primary aspects of the disorder:
- Macrosomia (excessive birth weight),
- Macrocephalyty, (excessive head size) and
- Ocular abnormalities.
Momo Syndrome – Wikipedia Page