Welcome page of Writing and FightingThis page is, or was, the original landing page for this Blog, and as such was intended as a welcome to new visitors. And while it is no longer the default landing page it is still intended as a place to introduce new visitors to this Blog and tell you a little of what it is about.

WELCOME dear visitor.

Multiple Sclerosis is a neurological demyelinating condition that affects the Central Nervous System (CNS). The symptoms can manifest themselves in almost any form. It can, in severe cases, be extremely debilitating.

This site has been put together by an individual who has been diagnosed with MS since 1994, and this site is a collection of the information he gathered while trying to gain an understanding of this condition.

Multiple Sclerosis – Writing and Fighting has been in existence since approximately  2004, and in that time it has evolved beyond the original design idea and now encompasses much more than MS. So, please feel free to explore and discover what else we have to offer.

You will note that I am not a Web Site designer. I can do the technical stuff but not the creative and artistic bits

Thank you for visiting, I hope you will find it informative, interesting, possibly educational, but most importantly – enjoyable.

This page is intended as a welcome to this MS Blog; All earlier web pages have been migrated from the original HTML site to become Posts on this WordPress Blog. This has been done, primarily, to make the site mobile-friendly as the old site had notably failed to keep abreast of the times.

To navigate this site begin by tapping the “blog” menu above right and see where it takes you; fasten your seat belts and enjoy the ride.

Update

It is now late 2016 and this page has been in place for a LONG time and is in dire need of an update.

The Blog has undergone many transformation most if which I cannot remember, but prior to the current “Writing and Fighting” it was named “Stephen’s MS Journey” which did adequately describe what the Blog was about, but was unlikely to perform well with the search engines.

Over the last twenty years I have come to both change my understanding of and my definition of what multiple sclerosis is. In the early years of MS, I was given to understand that it was disease of the central nervous system (CNS) which I assumed affected the nerves in the body and caused loss of sensation and loss of motor control.

Expected disabilities:

  • Loss of motor control, walking
  • Sensory loss, numbness, pins and needles

In the fullness of time, however, I have come to realise that this disease is, or can be, very much more debilitating than I ever imagined possible.

The central nervous system (CNS)

What is the central nervous system? I had, mistakenly, assumed that the central nervous system was the network of nerves that exist throughout your body sending systems to and from the limbs. This it seems is the peripheral nervous system. The central nervous system is the spine, the brain stem, the optic nerves and the brain.

The key point from my point of view at this current time, is the brain. The brain is central to everything, the brain is you. Your thoughts, feelings and emotions all occur in the brain.

In the last year or two, I have become painfully aware that my brain is failing. Dementia is setting in. Why? Yes, I’m getting older but that alone does not give cause to my loss of cognitive function. MS is slowly destroying my brain.

welcome stephen walker santa ponsa mallorca
Happier Times

The picture, above, was taken in Santa Ponsa in Mallorca. It must have been from only a few years ago. And I most certainly do have multiple sclerosis. Despite my looking so cheerful. I am only trying to demonstrate that having a chronic illness is no reason not to be happy.

The brain is a hugely complex network of nerves and, in multiple sclerosis, the immune system is wrongly targeting myelin as a foreign body. When myelin is damaged the underlying nerves fail to function correctly and if the damage persists, ultimately, the nerves will die.

Realised disabilities:

  • Cognitive dysfunction
  • Vision, Optic neuritis
  • Pain

It is true, that health is only valued when you lose it. This is so true of all abilities we take for granted when we have them; seeing, walking thinking and loving. All of the essential characteristics that make us human. Multiple sclerosis has the power to rob us of them all.

Welcome to my MS world

Elsewhere in this Blog I look at ways we can mitigate against the worst ravages of multiple sclerosis, some successfully, other not so. But the underlying theme of all my writings on this Blog is of hope. MS is not a death sentence any more than life itself is a death sentence.

So, the last few paragraphs may not sound very much like a welcome but they are. Yes there are days I just want to shut myself away, but there are also many days of fun and fruitfulness. You just need to know where to look.

 

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