Ellie Reading was born with Crouzon’s Syndrome, a rare genetic condition where the skull plates fuse prematurely causing abnormal skull development.
Ellie’s been wearing her frame for two months and is back at school. Later today, she’ll return to Great Ormond Street to have the frame removed which is a quick and simple procedure.
Initially suspected of having cancer, young Alex Clementson was diagnosed with Gorham-Stout Syndrome after being admitted to Great Ormond Street Hospital.
He’s recently had the tracheotomy removed, which is a huge step forward, and he’s doing well on the reduced medication. Alex is by no means cured of the disease but his treatment is going better than anyone could have expected.
