Despite extensive surgery to remove the Gigantiform Cementoma Novemthree Siahaan passed away in September 2005.
The tissue of the teeth to grow, uncontrollably, into huge facial tumours.
In Memory of Noventri Siahaan The Boy with a Tumour for a Face
Milagros Cerron The Peruvian Mermaid
Milagros Cerron born with sirenomelia has her legs fused together. The plastic surgery performed by Dr. Luis Rubio will be televised in Peru.
Babies born with this condition also lack any external genitalia, so her gender was not identified until three weeks later when chromosomal testing could be done.
Luciana Wulkan The Girl Whose Muscles are Turning to Bone
Fibrodysplasia ossificans progressiva (FOP), an affliction that turns muscle into bone. Luciana Wulkan and Robert Kinghorn are two of the few UK people with this rare condition.
As Luciana’s condition escalates, she may contort and freeze into a set position. If she’s lucky she may be able to choose that position for herself, if she isn’t her body will choose for her.
Juliana Wetmore - Building a New Face
Juliana Wetmore is continuing to undergo extensive, complex and risky cranio-facial surgery in an attempt to rebuild her face.
The Jacksonville community have been a huge support for the Wetmore family with regular fund-raising events for Juliana’s charity.
Juliana Wetmore - Child Born without a Face
A rare genetic craniofacial disorder known as Treacher Collins Syndrome has left Juliana Wetmore badly disfigured and in need of much surgery.
Juliana will need continuous surgery for many years to complete the rebuilding of her face.
Britain’s Fattest Teenager - Jonathan Wallace
At 18-years-old Jonathan Wallace weighs 32 stones. He is morbidly obese and will require stomach surgery to reduce his calorific intake if he is to survive.
In hospital being prepared for the operation, Jonathan is given a light supper, but this doesn’t appeal to him so, instead, he gorges himself on cakes and chocolate bars.
Jeanna Giese First Person to Survive Rabies
Dr Rodney Willoughby devised a radical treatment for Jeanna Giese when she contracted rabies from an infected bat at her local church.
Jeanna was put into a deep chemically-induced coma to allow her to be free from the ravages of her rabid mind while her immune system generated the necessary antibodies.
Dzhambulat (Jambik) Khatokhov The World’s Biggest Boy
Dzhambulat (Jambik) Khatokhov feted as the World’s Biggest Boy is seriously overweight and Dr. Campbell is determined to get to the cause of this obesity.
Born to a penniless, single mother Jambik’s fame may be boosting the family wealth but, his morbid obesity is ruining his health.
Ipex Syndrome A Kiss could kill Toby Ellis
Baby Toby Ellis has Ipex Syndrome a rare genetic condition passed from his mother. Toby can’t produce white blood cells leaving him with no immune system.
His only hope is a blood transfusion after chemotherapy. The odds are not good!
Hayley Okines - Hope for Hayley
Recent research in the USA may mean there is hope for Hayley. A drug developed for cancer may offer a treatment for Hayley Okines’ Progeria.
Having identified the defective protein, American researchers, testing the progeria cells they had collected, made an exciting discovery. A drug developed for cancer treatment restored the nucleus of the cells to a near-normal appearance. The drug is called a farnesyltransferase inhibitor or FTI.
