Jordan was born with a rare genetic condition, Proteus Syndrome, which, in it’s extreme form affects less than one hundred people in the world.
Soon, Jordan and Tracy will fly to America to visit the National Institute of Health in Washington D.C. The institute is one of the few places, in the world, that specialises in treating Proteus sufferers. For Jordan, his biggest hope is that they find a way to keep him walking.
Rebecca Medley and Katie Williams have a rare genetic disorder called Prader Willi Syndrome where they eat uncontrollably; an incurable condition.
Prader-Willi Syndrome also causes a wide range of learning difficulties, Rebecca gets special needs support at her local primary school. PWS will affect Rebecca’s social development, sexual development, and mental development.
Petero Byakatonga was born with an extremely rare disorder, his skull is being forced into a cone shape, squashing his brain and destroying his eye-sight.
Petero travels to Dalls to see Dr. Kenneth Salyer, a craniofacial surgeon, who will reshape his skull to remove the pressue from his brain and eyes.
Despite extensive surgery to remove the Gigantiform Cementoma Novemthree Siahaan passed away in September 2005.
The tissue of the teeth to grow, uncontrollably, into huge facial tumours.
Milagros Cerron born with sirenomelia has her legs fused together. The plastic surgery performed by Dr. Luis Rubio will be televised in Peru.
Babies born with this condition also lack any external genitalia, so her gender was not identified until three weeks later when chromosomal testing could be done.
Fibrodysplasia ossificans progressiva (FOP), an affliction that turns muscle into bone. Luciana Wulkan and Robert Kinghorn are two of the few UK people with this rare condition.
As Luciana’s condition escalates, she may contort and freeze into a set position. If she’s lucky she may be able to choose that position for herself, if she isn’t her body will choose for her.
Juliana Wetmore is continuing to undergo extensive, complex and risky cranio-facial surgery in an attempt to rebuild her face.
The Jacksonville community have been a huge support for the Wetmore family with regular fund-raising events for Juliana’s charity.
At 18-years-old Jonathan Wallace weighs 32 stones. He is morbidly obese and will require stomach surgery to reduce his calorific intake if he is to survive.
In hospital being prepared for the operation, Jonathan is given a light supper, but this doesn’t appeal to him so, instead, he gorges himself on cakes and chocolate bars.
Dr Rodney Willoughby devised a radical treatment for Jeanna Giese when she contracted rabies from an infected bat at her local church.
Jeanna was put into a deep chemically-induced coma to allow her to be free from the ravages of her rabid mind while her immune system generated the necessary antibodies.
Dzhambulat (Jambik) Khatokhov feted as the World’s Biggest Boy is seriously overweight and Dr. Campbell is determined to get to the cause of this obesity.
Born to a penniless, single mother Jambik’s fame may be boosting the family wealth but, his morbid obesity is ruining his health.
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